This week has been very busy with doctor's appointments. We started Tuesday with PT. PT is going great!! I love his therapist she has been such a huge support and resource for Baby T. She told me that from what she could tell she thought he would NOT be severe. Praise God!!!!
Wednesday he had a cranial ultrasound. The Ped. Radiologist seems to think that if the ventricles and cyst have changed they were only slightly larger. I was relieved to hear that but every time we have a scan I am always hoping and praying that they will tell us that he is healed. I will always have hope for that.
Thursday we were off to Atlanta to meet with his Neurosurgeon and Neurologist. The neurosurgeon wants us to have a MRI next month, June 17, because his head size is off the charts but he is not showing any other signs of developing Hydro so that is why he didn't feel the need to do a scan that day. I always love going to see Dr. Boydston because he is such an awesome doctor and person. He is very loving to both Tommy and us. I know that he will always do what is best for our precious baby. After we left there we went to the Neurologist. Once we got into our room they hooked Tommy up to 21 probes for his EEG. He did not like the nurse putting all of those on his head. It was so sad seeing him cry and me not being able to comfort him. We first thought he would have to have the probes on for 45 minutes but they were able to get what they needed fairly quickly. After the EEG Dr. Personality came to read it and said that it was uneventful and that everything looked normal!!!!!!! There is nothing like hearing everything is NORMAL!! He then told us he didn't know why he was shaking his head and that it could be Sandifer's Syndrome (has to do with reflux) or something else which pretty much means we bore him and that is why he does that.
Next Tuesday we will have our 4 month appointment(with shots) and meet with the GI doctor and then OFF TO THE BEACH!!!!!!! I am hoping that I will be able to relax there but something tells me that I will be more worried out of town than at home.
Thank you for the support and prayers. You all have no idea how much it means. I know that prayer is how we have gotten through this and I believe that the reason why Tommy is doing so good is because of all the prayers that have been said for him.
Proud Mommy,
Holli
Friday, May 21, 2010
Sunday, May 16, 2010
Update
I have not posted in a while so I figured I would give everyone an update as to what has been going on in our life. Baby T is still sleeping through the night except when he wakes for his pacifier. He seems to be a much happier baby which makes for a much happier mommy. He loves to smile, talk, and laugh to anyone who will talk back to him. He is such a loving baby and loves to cuddle.
On April 18th he got baptised. Thank goodness the preacher did it at the beginning of church because he was very sleepy. After he got baptised we went to my moms house and had a lunch with our family and close friends. Baby T was a bit overwhelmed at all of the people so he was very attached to Tommy and I.
He has had a cough since taking him to church but I think it is just his reflux which is still pretty bad. We took him on May 14th to have an Upper GI. He only ate two ounces of the Barium. The radiologist told us that everything looked good and was doing what is was supposed to be doing and that he saw some mild reflux. My thoughts were "You should come and try to feed him and then tell me it's mild!" So we are now waiting on an appointment with Dr. Isreal who is a ped. gastero doctor.
On Thursday May 13th we went to Atlanta to meet with a ped. neurologist. Tommy has been shaking his head no again pretty constant so we met with him to see if he knew why he was doing that. He said it may be Sandifier's Syndrome which has to do with reflux. Did I mention that the neurologist has the personality of a brick wall. He was not very talkative and was not offering up any information. He told us to come back next Thursday for a EEG and to bring a recording of Tommy shaking his head. Of course as soon as we left his office Tommy woke up and starting shaking his head again.
This next week May 17-21 we have physical therapy (which he is doing great at) on Tuesday, a cranial ultrasound on Wednesday(praying for stable ventricles and for him to say he is healed), and on Thursday we go back to Atlanta to meet with the neurosurgeon to go over the ultrasound and the we go over to the neurologist for the EEG. Then next Tuesday we have shots for his four month check up. I know Baby T will do get with everything because he is much stronger than his Daddy and I.
On the bright side after all of these appointments we will be going to the beach for a very relaxing and much needed VACATION!!!!!!
I will keep everyone updated after all of our appointments. Thank you for keeping Tommy in your prayers.
On April 18th he got baptised. Thank goodness the preacher did it at the beginning of church because he was very sleepy. After he got baptised we went to my moms house and had a lunch with our family and close friends. Baby T was a bit overwhelmed at all of the people so he was very attached to Tommy and I.
He has had a cough since taking him to church but I think it is just his reflux which is still pretty bad. We took him on May 14th to have an Upper GI. He only ate two ounces of the Barium. The radiologist told us that everything looked good and was doing what is was supposed to be doing and that he saw some mild reflux. My thoughts were "You should come and try to feed him and then tell me it's mild!" So we are now waiting on an appointment with Dr. Isreal who is a ped. gastero doctor.
On Thursday May 13th we went to Atlanta to meet with a ped. neurologist. Tommy has been shaking his head no again pretty constant so we met with him to see if he knew why he was doing that. He said it may be Sandifier's Syndrome which has to do with reflux. Did I mention that the neurologist has the personality of a brick wall. He was not very talkative and was not offering up any information. He told us to come back next Thursday for a EEG and to bring a recording of Tommy shaking his head. Of course as soon as we left his office Tommy woke up and starting shaking his head again.
This next week May 17-21 we have physical therapy (which he is doing great at) on Tuesday, a cranial ultrasound on Wednesday(praying for stable ventricles and for him to say he is healed), and on Thursday we go back to Atlanta to meet with the neurosurgeon to go over the ultrasound and the we go over to the neurologist for the EEG. Then next Tuesday we have shots for his four month check up. I know Baby T will do get with everything because he is much stronger than his Daddy and I.
On the bright side after all of these appointments we will be going to the beach for a very relaxing and much needed VACATION!!!!!!
I will keep everyone updated after all of our appointments. Thank you for keeping Tommy in your prayers.
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