Pediatric Neurosurgeon Appointment

God is so good!!!! We went on Thursday to Atlanta to meet with his pediatric Neurosurgeon, Dr. Boydston. We both were very anxious and scared about the appointment and what news may hear.

My mom, Tommy, and I left Macon at 6 a.m. to head to Atlanta. Baby T did so good on his first road trip. Once we got there we were the only patients in the waiting room which was a relief because I have been such a germ freak.

Once we got back to a room we gave the nurse the video of the CT for Dr. Boydston to go over with us. The video would not play in their computers so he sent it over to Scottish Rite for their radiologist to look at. After the doctor talked to him he told us that it is Dandy Walker Variant, the milder of the DW, and that Tommy had some vermis and vermis tissue. He then proceeded to tell us that it would be rare if he developed hydrocephalus and that seizures shouldn't be a problem. There may still be some developmental delays but that is something we will have to wait and see. So far everything that he is doing and his muscle tone is good. What a relief!!! He wants us to get an MRI in May to make sure nothing has changed and to get a better look at what the CT couldn't show us.

We have been so blessed to have such a compassionate neurosurgeon. He spent so much time with us and loved on Tommy. He told us that we probably wont need to see him again but that he would like to look at the MRI once we get it done. I love that we probably wont have to go back to him but he is such a great doctor and person that I wish he practiced in Macon.

When I called my friend Lauren last night to tell her the news she told me that it sounded like I had a load of bricks lifted off my chest. She also told me that I sounded like the old me. Since September I have been preparing myself for the worst and was constantly stressing and worrying about all of the what-ifs. I am so thankful to be able to breathe a little easier.

There is no way to explain all of our good fortune expect for the power of prayer. There is no doubt in my mind that all of the prayers for Tommy have healed him. God has made Tommy and I stronger in our faith and he has made us realize that the power of prayer is an amazing thing.

Please continue to lift Tommy up in your prayers.
God is good!
Holli